紓緩護理及預設醫療指示
我們的研究致力於提升紓緩護理及晚期照護，尤其着重推廣預設照顧計劃和預設醫療指示，服務對象包括癌症患者、兒童患者、長者以至全港市民。
紓緩護理是指透過及早識別及治療身體痛症及其他生理、心理、社交或精神方面的問題，幫助危重症患者預防或減輕痛楚，從而改善患者及其家人的生活質素。接受紓緩護理的患者一般飽受精神困擾，或會因而感到人生沒有意義，並產生一些負面情緒如恐懼、緊張、焦慮、灰心、自殺傾向、抑鬱、絕望等。
有時晚期病人會希望撤去維生治療，安詳而有尊嚴地離世。但若患者已失去意識、又未有預先表明醫療意願，該選擇何種醫療方式，是醫護人員經常面對的困局。預設醫療指示是清晰記載個人對晚期醫療所作選擇的書面文件，用來表明將來失去自決能力時所希望接受的醫療護理形式。預設醫療指示的概念建基於知情同意原則，並相信個人有自主權作出醫療護理決定。
相關研究項目
| 項目名稱 | 撥款來源 | 首席研究員 | 項目年期 |
|---|---|---|---|
| Research on basic medical insurance payment strategies of advance care planning under value orientation | National Natural Science Foundation of China (NSFC) | CHAN Yue Lai, Helen | 2023–2026 |
| The effectiveness of a multi-media experiential training programme in advance care planning for nurses working in acute care settings | General Research Fund (GRF) | CHAN YIP Wing Han, Carmen | 2023–2024 |
| Effects of a decision support intervention on end-of-life care planning in patients with advanced chronic obstructive pulmonary disease and their family members: A mixed method approach | General Research Fund (GRF) | CHAN Yue Lai, Helen | 2023–2024 |
| Identifying social capital for family caregiving in chronic organ failure: A concept mapping study | Public Policy Research Funding Scheme | NG Shek Nam, Marques | 2021–2022 |
精選學術論文
| Selected Publications |
|---|
| Chan, C. W. H., Choi, K. C., Chan, H. Y. L., Wong M. M. H., Ling, G. C. C., Chow, K. M., Chow, A. Y. M., Lo, R. S. K, & Sham, M. M. K. (2019). Unfolding and displaying the influencing factors of advance directives from the stakeholder’s perspective: A concept mapping approach. Journal of Advance Nursing. https://onlinelibrary.wiley.com/doi/full/10.1111/jan.14017 |
| Chan, C. W. H., Wong, M. M. H., Choi, K. C., Chan, H. Y. L., Chow A. Y. M., Lo, R. S. K., & Sham, M. M. K. (2019). Prevalence, perception and predictors of advance directives among Hong Kong Chinese: A Population-based survey. International Journal of Environmental Research and Public Health, 16(3), 365. https://www.mdpi.com/1660-4601/16/3/365 |
| Chan, C. W. H., Wong, M. M. H., Choi, K. C., Chan, H. Y. L., Chow, A. Y. M., Lo, R. S. K, & Sham, M. M. K. (2019). What patients, families, health professionals and hospital volunteers told us about advance directives. Asia-Pacific Journal of Oncology Nursing, 6(1), 72–77. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6287378/ |
| Chan, Y. L., Lee D. T. F., Chan, C. W. H., & Ko, P. S. (2018). Effects of a nurse-led post-discharge advance care planning programme for community-dwelling patients nearing the end of life and their family members: A randomised controlled trial. International Journal of Nursing Studies. 87, 26–33. https://www.sciencedirect.com/science/article/pii/S002074891830172X |
| Kwan, C. W. M., Ng, M. S. N., & Chan C. W. H. (2017). The use of life review to enhance spiritual wellbeing in patients with terminal illnesses: An integrative review. Journal of Clinical Nursing, 26 (23–24), 4201–4211. https://onlinelibrary.wiley.com/doi/full/10.1111/jocn.13977 |
知識轉移活動
報章撰文及傳媒專訪：
- 陳葉詠嫻及謝文琪（2022年7月22日） 。 南亞族裔人醫療自主意向。《信報財經新聞》。
- 陳葉詠嫻及黃銘謙（2018年11月2日）。〈保持尊嚴 安然離世〉。《信報財經新聞》。
- Chan, C.W.H. (2015, February 24). Many Hong Kong citizens still know little about end-of-life care. South China Morning Post.
所製作的健康教育資源：
健康講座／工作坊／探訪：
| 核心研究課題 |
|---|
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癌症及紓緩護理 |
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心血管、代謝疾病及中風護理 |
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老年、行為及精神健康 |
| 與我們合作 |
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陳葉詠嫻教授
陳裕麗教授
