Implementation science of advance care planning
Advance care planning enables individuals to clarify values and preferences for future care with family members and healthcare providers. However, its implementation process may be related to various factors in the sociocultural context, and thereby affecting the outcomes. Our research attempts to use various strategies to facilitate the conversation across hospital, care home, community and home care settings and explore the underlying mechanism. We have also developed different types of educational materials for raising public awareness. Our work contributes to nursing and healthcare in three aspects:
- building capacity for facilitating advance care planning;
- formulating guidelines and policies to support the practice; and
- developing model of care to improve access to advance care planning and continuity of care.
Related Research Projects
| Project Title | Funding Source | Principal Investigator | Project Period |
|---|---|---|---|
| Design, development and production of a board game aiming to promote the advance care planning in the community and research on the effectiveness of the product | Tung Wah Group of Hospitals | CHAN Yue Lai, Helen | 2020 |
| Develop an culturally-sensitive theory-driven advance care planning game for Chinese community-dwelling older adults | British Council BRICKS | CHAN Yue Lai, Helen | 2019–2020 |
| Effects of a motivational interviewing tailored programme for promoting advance care planning behaviours among patients with palliative care needs: A randomised controlled trial | General Research Fund | CHAN Yue Lai, Helen | 2018–2019 |
| Effects of a structured advance care planning guide among patients with advanced illness in hospital care settings: A stepped-wedge cluster randomised controlled trial | Health and Medical Research Fund | CHAN Yue Lai, Helen | 2017–2019 |
Selected Publications
| Selected Publications |
|---|
| Chan, H. Y. L., Chung, C. K. M., Tam, S. S. C., & Chow, R. S. K. (2021). Community palliative care services on addressing physical and psychosocial needs in people with advanced illness: A prospective cohort study. BMC Palliative Care, 20 (143). https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-021-00840-0 |
| Liu, L., Zhao, Y. Y., Yang, C., & Chan, H. Y. L. (2021). Gamification for promoting advance care planning: A mixed-method systematic review and meta-analysis. Palliative Medicine, 35(6), 1005–1009. https://doi.org/10.1177/02692163211005343 |
| Mills, J., Kim, S. H., Chan, H. Y. L., Ho, M. H., Montayre, J., Liu, M. F., & Lin, C. C. (2021). Palliative care education in the Asia Pacific: Challenges and progress towards palliative care development. Progress in Palliative Care, 29(5), 251–254. ttps://www.tandfonline.com/doi/full/10.1080/09699260.2021.1976951 |
| Chan, H. Y. L., Kwok, A. O., Yuen, K. K., Au, D. K., & Yuen, J. K. (2020). Association between training experience and readiness for advance care planning among healthcare professionals: A cross-sectional study. BMC Medical Education, 20(1), 451. https://doi.org/10.1186/s12909-020-02347-3 |
| Chan, H. Y. L., Lee, D. T. F., & Woo, J. (2020). Diagnosing gaps in the development of palliative and end-of-life care: A qualitative exploratory study. International Journal of Environmental Research and Public Health, 17(1), 151. https://doi.org/10.3390/ijerph17010151 |
| Cheng, S. Y., Lin, C. P., Chan, H. Y. L., Martina, D., Mori, M., Kim, S., & Ng, R. (2020). Advance care planning in Asian culture. Japanese Journal of Clinical Oncology, 50(9), 976–989. https://doi.org/10.1093/jjco/hyaa131 |
| Deng, R., Zhang, J., Chen, L., Miao, J., Duan, J., Qiu, Y., Leung, D., Chan, H. Y. L., & Lee, D. T. (2020). The effectiveness of a modified advance care planning programme. Nursing Ethics, 27(7), 1569–1586. https://doi.org/10.1177/0969733020922893 |
| Leung, D. Y. P., & Chan, H. Y. L. (2020). Palliative and end-of-life care: More work is required. International Journal of Environmental Research and Public Health, 17(20), 7429. https://doi.org/10.3390/ijerph17207429 |
| Leung, D. Y. P., Chan, H. Y. L., Chiu, P. K. C., Lo, R. S. K., & Lee, L. L. Y. (2020). Source of social support and caregiving self-efficacy on caregiver burden and patient's quality of life: A path analysis on patients with palliative care needs and their caregivers. International Journal of Environmental Research and Public Health, 17(15), 5457. https://doi.org/10.3390/ijerph17155457 |
| Liu, L., Zhao, Y. Y., Zhang, L. H., & Chan, H. Y. L. (2020). Measuring self-efficacy and readiness for advance care planning in Chinese older adults. Journal of Pain and Symptom Management, 60(3), 622–629. https://doi.org/10.1016/j.jpainsymman.2020.06.013 |
| Chan, C. W. H., Choi, K. C., Chan, H. Y. L., Wong, M. M. H., Ling, G. C. C., Chow, K. M., . . . Sham, M. M. K. (2019). Unfolding and displaying the influencing factors of advance directives from the stakeholder's perspective: A concept mapping approach. Journal of Advanced Nursing, 75(7), 1549–1562. https://doi.org/10.1111/jan.14017 |
| Chan, C. W. H., Ng, N. H. Y., Chan, H. Y. L., Wong, M. M. H., & Chow, K. M. (2019). A systematic review of the effects of advance care planning facilitators training programs. BMC Health Services Research, 19(1), 362. https://doi.org/10.1186/s12913-019-4192-0 |
| Chan, C. W. H., Wong, M. M. H., Choi, K. C., Chan, H. Y. L., Chow, A. Y. M., Lo, R. S. K., & Sham, M. M. K. (2019). Prevalence, perception, and predictors of advance directives among Hong Kong Chinese: A population-based survey. International Journal of Environmental Research and Public Health, 16(3), 365. https://doi.org/10.3390/ijerph16030365 |
| Lin, C. P., Cheng, S. Y., Mori, M., Suh, S. Y., Chan, H. Y. L., Martina, D., Pang, W. S., Huang, H. L., Peng, J. K., Yao, C. A., Tsai, J. S., Hu, W. Y., Wang, Y. W., Shih, C. Y., Hsu, S. H., Wu, C. Y., Chen, P. J., Ho, H. L., Pang, G. S. Y., ... Chiu, T. Y. (2019). 2019 Taipei declaration on advance care planning: A cultural adaptation of end-of-life care discussion. Journal of Palliative Medicine, 22(10), 1175–1177. https://doi.org/10.1089/jpm.2019.0247 |
| Chan, H. Y. L., Chun, G. K. M., Man, C. W., & Leung, E. M. F. (2018). Staff preparedness for providing palliative and end-of-life care in long-term care homes: Instrument development and validation. Geriatric and Gerontology International, 18(5), 745–749. https://doi.org/10.1111/ggi.13244 |
| Chan, H. Y. L., Ng, J. S. C., Chan, K. S., Chan, L. N., Ko, P. S., Leung, D. Y. P., Lee, I. F. K., Lee, D. T. F., & Chan, C. W. H. (2018). Effects of a nurse-led post-discharge advance care planning programme for community-dwelling patients nearing the end of life and their family members: A randomised controlled trial. International Journal of Nursing Studies, 87, 26–33. https://doi.org/10.1016/j.ijnurstu.2018.07.008 |
Knowledge Transfer Activities
In the Press/Media Interviews:
- 陳裕麗（2020 年11月1日）。〈預早訂立平安三寶 解後顧之憂〉。《柏友新知 》（第56期， 頁10–11）。 香港：香港柏金遜症基金。
- 陳裕麗（2019 年11月1日）。 〈晚期照顧政策我有SAY〉。《柏友新知》（第52期， 頁12–13）。 香港：香港柏金遜症基金。
- 陳裕麗（2018）。〈預設醫療指示與認知障礙症 〉。《認知障礙症．生活攻略》。東華三院。
- 陳裕麗（2018）。〈預設照顧計劃 〉。《無言老師》。香港中文大學醫學院。
- 陳裕麗（2018年5月 4日）。〈「最好的」照顧〉。《信報財經新聞 》。
- 陳裕麗（2018年4月18日）。〈緣份到了就會〉。《頭條日報》。
- 陳裕麗（2017年12月7日）。〈本地紓緩及臨終照顧服務的發展〉。《信報財經新聞》。
- 陳裕麗（2017 年5月10日）。〈認識「預設照顧計劃」〉。《am730 》。
- 陳裕麗（2016 年9月30日）。〈「吾」可「預．計」〉。《信報財經新聞 》。
- Chan, H.Y.L. (2015, March 30). Patients need frank talk with relatives on end-of-life care. South China Morning Post.
Health Resources Developed:
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Health Talks/Workshops/Visits:
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Cancer and Palliative Care |
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Cardiovascular, Metabolic and Stroke Care |
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Ageing, Behavioural and Mental Wellness |
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